This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...

Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...

Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...

The Impact of the CF Community This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, ...

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...

What Is Gene Therapy? The cystic fibrosis transmembrane conductance regulator (CFTR) gene contains the instructions for making the CFTR protein. When there is a mutation — or alteration — in the ...

Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...

*Respondents were able to select multiple answers to this question. The survey results reaffirm the importance of the Foundation’s mission to find a cure for CF and to provide all people with CF the ...

Hearing the words cystic fibrosis can be a lot for first-time parents — or any parent. In the fall of 2019, my husband David and I showed up for an OB-GYN appointment. I was about 11 weeks pregnant ...

You're probably wondering why we didn't go to any shelters. Well, to answer that question, we tried to, and they would take my partner in a heartbeat, no questions asked. However, with my cystic ...

I was 8 years old, standing in our family dining room with my dad, setting the table for my baby sister Jill's 2nd birthday celebration. Always older than my years, I remember so clearly saying to my ...

The Cystic Fibrosis Foundation strongly condemns the Senate’s reconciliation proposal, which will destabilize Medicaid and the Affordable Care Act (ACA) marketplace. If this bill becomes law, there ...