Living rurally with cystic fibrosis means every in-person appointment becomes a major undertaking of time, money, and energy. Telehealth once eased these burdens by connecting me to my care team ...

Before I was diagnosed with cystic fibrosis and while recovering from surgery for placement of a colostomy bag, I became very ill with influenza (or maybe it was COVID-19; we'll never know for sure).

From ages 5 to 20 I spent my summers at a small wilderness overnight camp in New Hampshire, and now I'm beginning to recognize the habits it instilled in me. From being open and comfortable talking ...

The Central Texas Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

The South Carolina Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...

The Iowa Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your ...

Palliative care guidelines provide recommendations to help reduce physical and emotional symptoms and improve quality of life for people with cystic fibrosis throughout their lives. Palliative care ...

Medicaid provides health care coverage for nearly 40% of people living with CF in the United States. This coverage is crucial for people with CF and their families to afford the highly specialized ...

Since 1998, the Therapeutics Development Network (TDN) has been conducting cystic fibrosis clinical trials and has developed not only individual expertise, but also a well-established infrastructure ...

Breathing problems (also called respiratory or pulmonary problems) affect the lungs and the airways and are the most serious problems associated with CF. The severity of respiratory problems differs ...

The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...

BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the National Institutes of Health (NIH) that it will set the reimbursement rate ...